Global Initiative for Sickle Cell Anemia - The Global Initiative for Sickle Cell Anemia - GISA

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Global Initiative for Sickle Cell Anemia Medical Fund
GISA
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200,000 SCD Births are Registered in Africa Annually
SCD is widely ignored globally, in a State House meeting the Minister of Health in Uganda was quoted to having said "Science has not proved that SCD is an emergency disease" We disagree! Tell Your Story, and let the world know what SCD really is!
14 Million People are Affected by SCD Globally
We reach out to our members to help them through a SCD crisis. It could be a shortage of drugs, lack of mobility, financial support etc. In a lockdown situation like the COVID19, volunteers on motorbikes respond to distress calls. We get there and deliver help.
70% of SCD Related Deaths are Preventable
MediFund is a fund mobilised globally from individual donors who contribute annually towards providing financial assitance to SCD Patients. SCD affects economies of entire nations your help can relieve this.
SCD is Ignored by Governments Globally
It is only in the United States where President Trump Signed a Bill into Law to put more Attention and Funding to SCD. We are advocating for a global wave of SCD aligned law, we want SCD to get more health care service attention and funding.
90% of SCD Child Deaths in Africa
SCD is survivable, knowledge is your key resource, through our Peer to Peer, Sickle Cell clinics globally share their lessons through podcasts, video conference, and exchange their learning with people affected by SCD allover the world.
80%

Babies Born with SCD Die in Africa
200,000

SCD Births in Africa Annually
14M

Affected by SCD Globally
70%

SCD Related Deaths are preventable
90%

SCD Child Deaths in Africa

Providing relief for persons that live with and those that are affected by Sickle Cell Disease by empowering them out of the challenges of poverty, access to treatment, drugs, and research aimed at crafting solutions for sickle cell disease.


SCD COVID19 Response

COVID19 has hit hard on people living with sickle cell disorder. We call out to the world to help raise funds to help us reach out to people infected by sickle cell disease who cannot reach a hospital or a pharmacy under the lockdown conditions that make it mandatory for everyone to close shop especially in Africa.

We need to reach out and provide help to SCD infected people that make a distress call to us, your support in helping us get to an SCD patient will help save a lives and keep families happy throughout this period of the COVID19 pandemic which continues to ravage the entire planet.

SCD Relief Aid

Through SCD Relief Aid; we crowd source for funds from a global community. These funds are used to help as relief aid to SCD patients who may be stuck in a hospital somewhere or facing a particular challenge related to SCD at home and anywhere. SCD is poorly funded globally and we understand the challenges that persons affected by SCD go through everyday because we have experienced these challenges first hand.
Global Initiative for Sickle Cell Anemia

SCD MediFund

Through the SCD MediFund we mobilise financial resources to help equip SCD clinics with the necessary machinery to attend to SCD patients thereby ensuring the reduction in costs for medicare for SCD medical services. We want to be able to equip hospitals with machines such as Plasma Pheresis Machines, Spectra Optia Aphresis System (Terumo BCT), Hematology Analyzers and Cell Density Measurement Technology among others.
Global Initiative for Sickle Cell Anemia (GISA)

Parliamentary SCD Caucas

Parliamentary SCD Caucas is a parliamentary advocacy initiative that is dedicated to mobilizing the legislative arms of governments to support and advocate for the establishment of facilitating law that would make the realization of specialized sickle cell treatment more reachable by Acts of law rather than by the passive dependency on government reaction.
Global Sickle Cell Clinics Discourse

Newborn Screening

The Global Initiative for Sickle Cell Anemia annually mobilises funds through crowd funding towards facilitation of SCD Screening in Newborn children in Africa. Through this we want to create a platform for early SCD interventions to ensure that we break the chain in child mortality rates in Africa. We also want to track the growth of these babies up to 6 years. This follow up will involve services such as; counseling, education materials and access to a SCD specialised medical services.
Global Initiative for Sickle Anemia (GISA)
Meet Olatunji Wamiri - Super Warrior
I have ventured into Wamiri SCF to advocate for people living with sickle, create more awareness and to help as many as we can whenever we are capable of.
Published by Olatunji Wamiri - 5/7/2020
Losing Omotoye Ajiboye in JSS 1 to Sickle Cell
Losing Omotoye Ajiboye in JSS 1 to Sickle Cell Disorder many years ago was devastating as a child. We attended same Primary and Secondary Schools.
Published by Oluwadaisi D. T. Olaseinde - 5/7/2020
Self-Advocacy in Sickle Cell Care
Today June 19th, we commemorate the World Sickle Cell Day across the globe as we Shine the Light on Sickle Cell Disease
Published by Sharifu K Tusuubira - 19/6/2020
Stroke in Children with Sickle Cell Disease at Age 5
Strokes are an occurrence one expects to see in older people, but in children with sickle cell disease (SCD), they occur most commonly at age 5.
Published by Stroke Center - 8/6/2020
Acute chest syndrome in children with sickle cell disease
Caused by infections and/or a blockage of blood flow to the chest and lungs, acute chest syndrome (ACS) is a complication in sickle cell patients that can...
Published by GISA News Anchor - 8/6/2020
Home care for children with sickle cell disease
Being in and out of hospital is one of the worst experiences parents of children with sickle cell suffer. However, parents should never tire from being in ho...
Published by Beatrice Nakibuuka - 8/6/2020
Leiya's Story
Sickle Cell Disease: Leiya's Story
Published by UCSF - 8/6/2020
Stem Cell Transplant
Stem Cell transplant for adult achieves treatment milestone in Canada
Published by Greg Harris - 8/6/2020
‘Adulting’ with sickle cell anemia
Transition clinics help young patients aging out of pediatric care
Published by Sandra Jordan - 8/6/2020
Sickle Cell Health Insurance
Experts advocate public health insurance for sickle cell patients
Published by Adaku Onyenucheya and Judith Muoneke - 8/6/2020
Growing With Sickle Cell Disease
Transitiong from Paediatric to Adult Care
Published by Kim Huston - 8/6/2020
New CRISPR Technology is a Ground Beaking Breakthrough for SCD
In A 1st, Doctors In U.S. Use CRISPR Tool To Treat Patient With Genetic Disorder
Published by Rob Stein - 6/6/2020
Battle of a Warrior
Holmes' Son Battles Sickle Cell Disease
Published by Barbara Barker - 6/6/2020
Sickle Cell Poll
Sickle Cell Poll Dispels Long Held Views
Published by Caribbean National Weekly - 6/6/2020
Conversations That Inspire
Conversations That Inspire Us to Think Differently
Published by Pfizer - 5/6/2020
Partnering to Uncover Sickle Cell
Partnering to Uncover Sickle Cell Disease in Sub-Saharan Africa
Published by Pfizer - 5/6/2020
A Reason to Fight
Sickle Cell Fighter has ‘Many Reasons to Smile’
Published by Carter BloodCare - 5/6/2020
Everyone with the sickle cell gene
Everyone with the sickle cell gene mutation descended from the same ancestor 7,300 years ago
Published by Sarah Wild - 5/6/2020
The SCD Burden
The burden of living with sickle cell anaemia
Published by Solomon Asaba - 5/6/2020
Coronavirus: 38-year-old SCD Warrior Lives To Tell Her Story!
Nora Molongwe, 38, had just returned from a trip to Bournemouth to receive the Inspiring Young People 2020 Award
Published by GISA News Anchor - 10/5/2020
Global Initiative for Sickle Cell Anemia (GISA)

Your Story

Your Story is an awareness campaign of The Global Initiative for Sickle Cell Anemia (GISA). Through Your Story, we source personal stories of persons affected by SCD; whether you are a patient, parent, guardian, and or friend to a warrior. We encourage you to share your story with us which will be posted on our story board. Your story may involve knowledge which another person affected by SCD does not have and may work as resourceful information that another person can ably utilise besides helping us achieve the ultimate goal of letting the world know about SCD and how it impacts everyone differently. Your story is a learning lesson to another SCD affected, family, person or individual and helps us build more awareness on SCD to instigate governments and private establishments alike to put more focus on SCD and other blood disorders.
Global Initiative for Sickle Cell Anemia

Legislature Fund

The Legislature Fund is an advocacy initiative of The Global Initiative for Sickle Cell Anemia (GISA). Through this initiative we advocate for laws that uplift health care systems in countries around the world to put more emphasis and focussed care on persons with sickle cell disease and other blood disorders.
Global Initiative for Sickle Cell Anemia

Warrior Ambassadors

The Warrior Ambassadors advocacy initiative draws in persons that have lived long with SCD, and persons that are popular in society to help use their experience to draw deeper attention to SCD. Warrior Ambassadors may register through our website and ensure to make a mention about SCD at any event or occassion that will make the global public more receptive to acquiring solutions to SCD.
Legislative Advocacy for Sickle Cell Disease

SCD Peer to Peer

The goal of the Peer to Peer program is to create a SCD value chain where SCD clinics share video bytes of their SCD clinical discussions so that this knowledge can be utilises by a global fraternity of persons affected by SCD. The peer to peer will consist of a GISA web based platform from which we shalll have global SCD clinics share their videos of learning sessions which may be used as webinars and also posted onto our Youtube channel from where a global audience will be able to utilise these SCD learning resources.
Global Initiative for Sickle Cell Anemia

Volunteer At GISA

Through our Volunteer Program, we help persons affected by SCD at a local level. Volunteers get to do lots of stuff with GISA, we work with our global Warrior teams to identify volunteer opportunities. Our members globally work together to create the best experience for volunteers while they are in their countries. Volunteers come in various capacities and skills. If you are a lawyer, a doctor, a writer, a blogger, a 'chatter box' - everyone is valuable to GISA, persons affected by SCD have a myriad of challenges and your skill could just about be the solution to an individual and to The Global Initiative for Sickle Cell Anemia as an organization.

GISA Guiding Principles


PEOPLE |PARTICIPATION |PARTNERSHIPS
_____________



STRATEGIC PARTNERS


We work with a myriad of partners that are carefully identified and sourced to bring added value to the organization and its members. Our Partners are highly valued entities that bring great value to the SCD community. Some of our partners are as appears below. click on any partner logo below to relocate to the partner website.
        

The Blood Run Marathon


The Blood Run Marathon is a 13 miles run that works toward the realization of a mass awareness on Sickle Cell Disease. The marathon is an annuall marathon that is held in any country around the world under the authorization of GISA. We work with Warrior Teams around the world that help us extend our reach globally to get our goals achieved all over the world. The Blood Run Marathon attracts all kinds of people that take part in both a full and mini marathon.

You can find out here how to start a Warrior Team in Your Country.

Global Sickle Cell Awareness Marathon
Global Sickle Cell Advocacy Campaign

Walk With The Warriors

Walk With The Warriors is an awareness and advocacy platform where persons affected by SCD get out to the public through a Walkathon. This Walkathon happens around the world organised by Warrior Teams in any country around the world authorised by GISA.

The Walkathon involves persons of all kinds reaching out to the public sharing and distributing fliers. We walk the streets of any capital city and or town where holding the walk in a capital city is unauthorised, we have create awareness along the walk.
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GISA

The Global Initiative for Sickle Cell Anemia
Global Initiative for Sickle Cell Anemia Parliament Legislature Fund
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